Vocal Voices

First thank you all for your thoughts and good wishes today, it means a lot

I saw Mr Geyer, the big boss man today. it's the first time we have met and he is very nice. Really understanding and patient. Explained everything and was straightforward and honest with me. He says that my hearing loss is severe and will be life changing for me and that I am coping really well.

There was nothing nasty going on in my scan, but he wants me to have an MRI anyway, just to be absolutely sure. He is pushing for me to have it at Swindon in the open scanner as I am very claustrophobic.

I'm to have a steroid injection in my ear next week. He will be doing it and he says if he was in my shoes he would have it done although the chances of it working are slim. It seems, as has been said before, that I have lost my hearing and we may never know why. I had some more bloods taken to check again for auto-immune things.

I had another hearing test and there is no change. I will not be helped with a normal hearing aid as there isn't enough hearing to 'aid', but we will talk about something called a 'bone anchored hearing aid'. This is attached to my scull and the sound comes in through the bone.

He is also referring me to the tinnitus clinic to see if they can help train me to cope with the extra noise I hear.

I'm feeling ok and it's funny because twice the doctors have looked me in the eye and said, 'you are coping with this so well'. It makes me wonder what other people do...run around screaming? I have had the odd moment when I feel thankful that I am not someone who gets down easily because I can see that it could be really frightening and depressing.
I just wish I could hear music well enough to dance to, seems I'll just have to put up with Mr Loz singing in my ear

I think the doctors are right - you are coping well, better than most I think ((((((((((((((x))))))))))))))

I'm so glad nothing horrid was found and the open scanner sounds a good idea - hope that can be arranged for you. The steroid jab, does that mean there is a tiny chance it might do something towards restoring some hearing?

xxxxxxxxxxxxxxxxx

Loz, huge huge huge gert hugs xxxxxxxxxxxxxxxxxxxxxx

Such a worry for you and Mr Loz and you're being so strong.

Just have to put up with his singing for a bit longer then.

Hope the steroid injection helps, even if it's just a little bit.

And have more hugs, just because xxxxxx

All hugs gratefully received
There is a slight chance that there could be a little improvement, so it's worth doing.

glad you are getting some help lozz
lets hope things improve and the clinic can help you
on the plus side youve got mr lozz singing to you (sigh)
have a hugxxx

Loz, my friend's mum has a bone anchored hearing aid. It seems to help her enormously. She shops, goes to bowling club, bingo, etc and, unless you knew, you wouldn't really know she had hearing problems.
She's had this aid for a few years now and she said it's changed her life!

When will you be getting your aid?

(((Loz)))

Oh, Loz. I do hope they can help you.

I'll say a little prayer for you tonight,

XXX

Anything that might help is worth a try Loz.
You are managing extremely well, although I'm sure you have moments.
Very pleased nothing untoward was found on the scan, but such a huge shame it's happened at all
Di
xx

Thanks everyone (((((((((VV))))))))

Shaz I don't know yet. We will discuss it soon I hope.