I saw Mr Geyer, the big boss man today. it's the first time we have met and he is very nice. Really understanding and patient. Explained everything and was straightforward and honest with me. He says that my hearing loss is severe and will be life changing for me and that I am coping really well.
There was nothing nasty going on in my scan, but he wants me to have an MRI anyway, just to be absolutely sure. He is pushing for me to have it at Swindon in the open scanner as I am very claustrophobic.
I'm to have a steroid injection in my ear next week. He will be doing it and he says if he was in my shoes he would have it done although the chances of it working are slim. It seems, as has been said before, that I have lost my hearing and we may never know why. I had some more bloods taken to check again for auto-immune things.
I had another hearing test and there is no change. I will not be helped with a normal hearing aid as there isn't enough hearing to 'aid', but we will talk about something called a 'bone anchored hearing aid'. This is attached to my scull and the sound comes in through the bone.
He is also referring me to the tinnitus clinic to see if they can help train me to cope with the extra noise I hear.
I'm feeling ok and it's funny because twice the doctors have looked me in the eye and said, 'you are coping with this so well'. It makes me wonder what other people do...run around screaming? I have had the odd moment when I feel thankful that I am not someone who gets down easily because I can see that it could be really frightening and depressing.
I just wish I could hear music well enough to dance to, seems I'll just have to put up with Mr Loz singing in my ear
